Monday, August 12, 2019

59 Trips Around the Sun

Brain cancer is...

....celebrating Darrell’s birthday with a pizza party.

You know the significance, right? We are at home with Gordon! Gary generously planned and hosted Darrell’s party to close a momentous day.

Andi and Darrell sprung  Gordon from rehab this morning. Gary came over soon after, and we met with the home help person. In other medical progress events, Andi and LuAnn made a successful trek to USC.  Before pizza, Darrell and Andi got Gordon settled with medications and necessary home adjustments.

We are enjoying Gordon’s “firsts” back home after two and a half months away.

One great first? First birthday pizza and slumber party at Gordon’s house!

Happy Birthday Big D!

Sunday, August 11, 2019

All Birthday, All the Time

Brain cancer is...


...celebrating with Alex and Tiana, Birthday Part 2.

Birthday Month Day 11?  We are so fortunate to drive down the mountain and straight to Alex and Tiana’s home...for celebration part 2 with them.  They took us to lunch and hosted a movie. 

Yay for kids! Yay for birthdays! Yay for colorful umbrellas! Yay for more!


Family History

Brain cancer is...


..appreciating a long family history.

On Birthday Month Day 10 we appreciated sharing family memories of the cabin and adventures, memories that stretched decades.

Friday, August 9, 2019

Lake Day

Brain cancer is...


...enjoying a leisurely day in Big Bear.

Birthday Month Day Nine was a great balance of good things.  We slept in, had great meals in and out, took great hikes, shopped some, and enjoyed games and movie time.

Here are a couple pics of the sights.

Happy Friday, Friends!






Thursday, August 8, 2019

"Way to Rep the Tail Darrell:" 42 Months

Brain cancer is...

 ...repping the tail.

Birthday Month Day Eight is also Darrell's 42-month cancerversary.  That's 3 1/2 years, Team D.    Andi is unexpectedly emotional about it.  I can't talk or text about it without crying.  We didn't have much hope that Darrell would be proudly owning his castle (above) at 3 1/2 years post diagnosis. 

Why not?  Because we can't ignore numbers. 

Briefly, this picture (below) of the normal curve depicts the probability of randomly distributed events happening.  The higher the point in the curve, the higher the probability of something happening.

The median survival of GBM is 15 months.  (If you had to guess someone's survival, based on what's happened to other people, you'd guess that a newly diagnosed person would have 15 months left on earth.)

When Hallie and Ruth visited us in the hospital at Darrell's diagnosis, Ruth said, "the tails in a distribution are long."

What she meant was that very few people survive for a long time with GBM...but somebody does. Above you see the chances of Darrell surviving 42 months are low...Waaay out at the tail.

What Ruth said was very helpful, because she didn't say, "Ignore the numbers!" (which is not in our nature), but that Darrell might survive longer than average, even given statistical probabilities.

Today when we texted the good news to Hallie and Ruth, Hallie said, "Way to rep the tail, Darrell!" (Rep = represent.)

News on Birthday Month Day Eight couldn't be much better....except to say we're looking forward to Brady, Linda, Bennett, and Christian joining us for a couple days in the mountains.

Keep on repping the tail, Darrell!

Wednesday, August 7, 2019

Birthday Month Day Seven: To Boldly Go Where No One Has Gone Before [At Least Not the Two of Us]

Brain cancer is...

...boldly exploring new galaxies.

You recall the Star Trek tagline, "To boldly go where no one has gone before"?  (Which is of course silly because there were natives wherever the Enterprise landed, but that's a separate story...)

Today we boldly went where the two of us have never gone before.  Here are some of our bold new discoveries, in pictures:

1.  Despite all of our hours at Craig Park, Darrell has never boldly sat at this bench.

2.  Despite all our years of best intentions, we have never boldly visited an attorney to plan our estate.  We have been far too busy.  Today?  We boldly planned.
3.  Despite its compactness, our backyard has a corner we have never boldly explored.  The neighbors' removal of our beloved bougainvilleas sent us to the back corner for debris removal.

 Ugh.  More boldness required.

4.  Despite August being the birthday month, we have never boldly celebrated an August 7th birthday.

Happy birthday, Lennie!

Happy Bold Birthday Month Day Seven, Team D!


Tuesday, August 6, 2019

Book of Beasts

Brain cancer is...

...celebrating Birthday Day 6 at the Getty.

LuAnn spotted the exhibit,  Book of Beasts in the Medieval World (here), in the nick of time (it closes soon).   We learned lots about bestiaries and beasts, and LuAnn treated us to an elegant birthday lunch as well. Thanks, Mom.

What a lovely day you were, Birthday Day 6!

Able to tolerate more information about beasts?  Read on.

Here are just three fun facts from today. Not four.  You're welcome.

1. A bestiary is a medieval book of real and imagined beasts.  The person who drew the pictures was different from the person who wrote the text, so they had to have an unusually high degree of collaboration.  The writer went first and had to plan space for the pictures.  Here's a typical page:

 
2.  In medieval Europe, everything on earth (including the animals) was viewed in its relationship with God.  Every animal in the bestiaries was well known for its stories and symbolism.  The unicorn, for example, was a symbol of Christ.  The maiden often shown with the unicorn was Christ's mother, Mary.

Left, see the unicorn (Christ) being stabbed (sacrificed) as it sought its mother's lap.

3. Lions--the king of the beasts--are the first animals listed in a bestiary.  Lots of symbolism there too.  People believed that lions were born dead, and after three days, they arose from the dead given the loving, warm breath of their parents (bottom image).

In case you're sad about the dead unicorn, here's a happier image (this one in a tapestry) to give you blissful dreams:

Happy Birthday Day 6 Dreams, Team D!