Sunday, March 27, 2016

Brain cancer is...

 
 

...refashioning holidays.

Easter is important to us, and Darrell and I typically host, with much planning involved, and many family members needing to consider their schedules.  This year we didn't think of the holiday until about...Friday.  Just like that my mom LuAnn had the meal prepared and ready to bring over, and both Melanie (despite work-induced sleep deprivation) and Gail were able to make it, daffodils in hand. 
 
People were good sports in dying eggs (above), and conversation around the dinner table was sweet. It was a great reminder to lean into priorities.  Thanks, family. 
 
More little "eggs" are Darrell's wonder chemo pills.  Here's what it looks like to prepare for the week:
 
 
  • Foreground = temozolomide (140 mg big pill plus 5 mg tiny pill; 7 days a week)
  • Background = the usual plus anti-nausea and antibiotic to prevent nasty infections like pneumonia

After this week, Darrell has only one more week of this particular dosage.  Maintenance phase treatment is still being planned.  Traditional treatment would continue temozolomide one week each month.  The tumor's MGMT negative status might change the dosage to metronomic (daily, but lower dose) or might change the agent.

 
Thinking of you in this season of rebirth.
 
 
 
 
 
 





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