Today’s photo depicts a boy with his chemo drugs. I am at a loss for what to say about the
outfit. A man’s gotta wear what a man’s gotta wear.
Brain cancer is...
…a big fat baby.
Specifically, brain
cancer is some otherworldly infant with a mercurial disposition, throwing a temper
tantrum one minute and giggling happily the next. Worse yet, brain cancer is the kind of big
fat baby who messes with others’
emotions.
We know about the
big fat brain cancer baby because our emotions seem to be highly changeable,
and they come on at will and unexpectedly.
Our only conclusion? Some diaper-wearing
despot is in charge.
I have several family
members who admit to being well acquainted with the big fat baby, but I don’t
have rights to their stories. So here’s an
Andi-centric story from today.
Andi’s Thursday
with the Big Fat Baby
I wake up in the
sunshine (yes, the gorgeous linen curtain is partially open) to the face of my
spouse of 33 years. He is so beautiful,
I start to cry. My snuffling alerts him, and when he turns to look at me, his face
says: “Rrruh Rrroh. This one is nuts.
Who cries before a day even begins?”
But he smiles, pats me, and tells me that I’m not wearing my
glasses. (More about the baby: He bullies us separately so that our emotions
are out-of-sync; one person is feeling weepy while others are hopeful, excited
about burritos.)
I get to campus for
a faculty consult…without my wallet. Further
desolation. This is a consult over
coffee, and I really need a latté to pour into my morning’s emotional wounds. “What a bad, bad day!” I text Darrell, who is no doubt happy that the crazy
woman he married is a safe distance away from his busy morning. Those who text with Darrell knows that he’ll
respond, despite his schedule. Further,
you know that his response to my text says:
“Sorry!”
Then my consult faculty
member arrives, and she offers me a latté.
Gratitude Journal Entry! Just
like that, it’s a good day. Stop messing with me, Baby.
Back home, I put the
chemo drugs into the pill dispenser, getting ready for Monday. I realize that I forgot one of the drugs, and
I spend a few minutes despairing over the repercussions for mistakes I might
make in dosages. Yes, Monday is a long
time from now and we would have double-checked, but that’s rational talk. The Baby’s talking now. Zach and Darrell gather around the pill
dispenser for training, and we’ve now got several layers of safety built into our family
chemo-pill dispersal plan.
At 2:00 p.m. Darrell
hangs the kitchen blind (busy, busy Darrell!), and life is back to normal. Bye bye Baby...see you at 4 (it turns out, but that's a different story).
The Good News
Even though our emotions
seem often mercurial and out-of control, we’ve studied them a bit and recognize
a clear pattern. We agree that whenever
we face some emotional low, what follows next always seems to be a high, some
moment of grace where the people who surround us reach out and lift us up. Your emails, texts, hugs, calls, treats—every
sweet thing you do—always comes just at the right time, right when we need a
hand to pull us away from the big fat baby.
How do you do that?
If the members of Team Darrell took a poll, I bet we collectively would all exclaim, "Andi, how do YOU do that?" With all your glorious attributes, your generosity of self is what I have admired about you the most. Yet even in this "baby" of a struggle, you have garnered even more grace and strength to give to the rest of us. Thank you for sharing your journey. I'm now in search of a latté just for you!
ReplyDeleteVicki, thanks so much for those sweet, sweet words. This experience is teaching us just how much love, caring, and selflessness there is in the world. When you find that latte, text me. We'll drink it together!
ReplyDelete