Wednesday, March 9, 2016

Brain cancer is...





...a chance for new rules for everyone!

Brady and Linda took the day off, drove down, and took us out to lunch.  Brady in particular noticed that it was really nice to not be at work on a Wednesday and instead to eat lunch al fresco with family.  We agree. Thus, we seem to be facing a great opportunity for us all to reconsider rules by which we live life.  We suggest a new rule:  No Work Wednesdays.  Hurrah!

Updates
  • We see Dr. Dolkar (radiologist) on Wednesdays after radiation.  She's a great listener and uses "wait time" like an expert teacher.  Today she filled us in on what post-radiation life will be like.  Namely, Darrell will have an MRI about every six weeks.  We hope to see no changes over time to the edges of the "cavity" where the tumor was removed.
  • Apparently many GBM patients choose to be patients of both their primary oncologist and a specialist. We got our appointment for a consult at UCLA with Dr. Tim Cloughsy, noted GBM expert, on April 11.  It's the first weekday after Darrell finishes radiation.  (So soon!  I know!) 
  • Checking in on the "be nice to people you don't know" strategy:  Our tentative finding is that it does contribute to the quality of daily interactions. Three recent examples:  The man at the hazardous waste (paint) drop off was a treasure. The guy at Alexander's rugs treated us like family.  The scheduler at UCLA stayed on the phone to tell us that it was her top priority  to call us back.   Wait a minute!  These seem to all be examples of people being nice to us (and not the reverse). Gratitude journal for sure.

2 comments:

  1. Excellent post Andi! Keep 'em coming! No Work Wednesdays? I think they already have that in France, and doctors here need a day to play golf! Ha! Sounds great for the rest of too... Thanks, Geoff

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  2. Szabos and Guillaumes head to Paris.

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