Sunday, April 30, 2017

Post Traumatic Growth?


Brain cancer is...

...thinking about growth.

You may recall that much of Zachary's scholarly work focuses on combat-induced Post Traumatic Stress Disorder (PTSD) throughout history.  Fortunately, true PTSD is a relatively rare phenomenon.

The other night I had the privilege of working with Zach to edit his latest work.  His work built an argument that Basil II (A Byzantine Emperor with the cheery nickname, "Basil the Bulgar Slayer") experienced PTSD after a horrific ambush and then rose above the trauma to function more effectively than before the trauma.  Zachary argued, using historical sources, that Basil experienced Post Traumatic Growth (PTG).

As I read Zach's paper, I had that striking sensation that his words were describing me and my experience following Darrell's diagnosis.  Darrell confirms that he feels the same way.  Here's what Zach's paper captured for us regarding our PTG experience:

  • Personal development, including recognition both of new strengths and of one's limitations.
  • Relationship growth, including value placed on family and friends and increased reliance on support networks (that's you!).
  • Shifts in philosophy of life, including a reevaluation of what is important in life (Life 2.0).
As I read, and as Darrell and I talked, we were really struck by how true these experiences run for us.  Someone has a name for it!  We aren't alone!

In fact, growth after trauma of any sort is, fortunately, a much more common human experience than is PTSD.  I read of a study that said most people (90%) who experience trauma also experience at least one of the components, above, of growth.  (Side note:  Trauma is bad.  We would prefer Life 1.0 to Life 2.0, but we don't get to pick.  PTG suggests that from loss there can be gain.)

The hallmark of Post Traumatic Growth is not resilience--or returning to the prior level of functioning--it's creating a higher level of functioning, with the apparent benefit being an increased ability to face future stressors.

A difficulty in studying PTG is that it's very hard to measure actual growth.  To do so, one would need to measure current functioning, expose a person to trauma, and then measure functioning again. Not ethical.  Instead, researchers usually rely on self perceptions of growth. For instance, the psychologist of this post posits that holding the position "what doesn't kill us makes us stronger" is a coping mechanism we use to protect ourselves from the possibility that we have been harmed by trauma.

So you can see why we're thinking about growth.  Thinking and thinking.  We've decided that whether our growth is real or merely perceived, it's a better choice than the alternative.  Why would we want to live life any other way?



PS...Aren't you glad we didn't name this post "Sunflower Sunday?"

Saturday, April 29, 2017

Steak Saturday

Brain cancer is...

 

...a good reason to have steak twice in one day.

Our first filet mignon was lunch at Hungry Bear.  Right before I took the picture, above, Darrell said, "I love this place!" 

For dinner we had filet mignon ala Summer and Zach.  Yum!

We hope that, whatever you love, you have it twice today.



Friday, April 28, 2017

Fancy, Fly Friday

Brain cancer is...

...so fancy! So fly! 

Andi started the day with a couple meetings regarding our third annual upcoming STEAM summer camp for English language learners.  (The meetings were wonderfully high energy with great promise of future success.  Thanks for asking.)

When I returned home, Darrell let me know that he had planned our Friday lunch date, and he was looking pretty fly

He told me, "I felt the need to pair this gray shirt with the complementary patterned over shirt.  Plus the dark gray shorts on bottom?  I am a color genius."  Tell me something I don't know, Big D.

I am a lucky woman.  Happy Fancy, Fly Friday, Team D!

Thursday, April 27, 2017

Thursday? Three Boys at Breakfast.

Brain cancer is...

...reveling in the family days.


We enjoyed breakfast with Gordon in Glendora, as did Beowulf in his efforts to let Mousse rest.

Safari hats fashion choice? On point.



More great news: Mousse had his casts (aka "Camo Uggs," aka "Stanky Leggs") removed. Here's what he thinks about that.
He continues with the blue cone of shame, seen above.  His sutures get removed next week.  But anything is better than yesterday, according to Mousse and his smile.

We hope you find several reasons to smile today too!

(PS...Despite our smiles, we'll be glad when this week is over. The alliteration is assassinating us.)

Wednesday, April 26, 2017

Wednesday Wit and Wisdom

Brain cancer is...

...enjoying your wit and wisdom.


Darrell is, above, smiling at the good ideas you are sharing with us.

This Emerson quote, shared by Chris, was an Easter egg message. It says, "To know even one life has breathed easier because you have lived.  This is to have succeeded." 

By the way, we finished reading all the egg messages and thoroughly enjoyed each of them. They provided a great combination of inspirations, personal best wishes, and plenty of fun facts about jelly beans, Peeps, and chocolate.

Speaking of chocolate, Meridyth shared the message she received in her Dove chocolate: "Buy both."  Words to live by!
 

And when the Case Crew took a family hike the other day, they captured this gem:


Finally, in this month's AARP magazine, Michael J. Fox shared his tips for living with adversity. As you know, Fox has lived with Parkinson's Disease for 26 years and is surprising many with his long and robust life. His tips really resonated with us.

Thanks for these great messages, Team D, and Happy Wise, Witty Wednesday!

Bonus Content


For the fun fact lovers in the house: Darrell wants you to know that, above, he was prepping for his 90th array change. Fun for sure! Keep' em coming!

Tuesday, April 25, 2017

Timeless Tuesday

Brain cancer is...

...running out of things to do at home.

We're discovering that people who are (a) not at work nor (b) traveling have very loooong days.  It's only 2:25 p.m. here, and either one or both of us has already:
  • Had a nutritious breakfast 
  • Dropped off spent arrays for mailing
  • Enjoyed the babies during our walk at the park (above)
  • Worked out
  • Supported Zach with the patient, Mousse
  • Had a meeting and a very happy lunch with Teresa and Kim C.
  • Mailed a package
  • Went back to Ralph's
  • Washed the car
  • Mowed the front lawn
  • Replaced the keyboard
  • Worked on writing a booklet about beetles for kids
  • Cleaned the kitchen
Now what?

Oh, the problems we have!

In Other News

The lamb chops were delicious.  If lamb is your thing, click here for the recipe we tried.  Easy and good.

We are living vicariously through Alex and Tiana on their adventures with Tim and Moira in Abu Dhabi.  Here are two pictures Tiana sent today.

Sheikh Zayed Grand Mosque.  One of the world's largest, it can hold 40,000 worshipers.  It's named for the founder and first president of the United Arab Emirates.

Alex, wearing a kandoorah at the mosque.



Monday, April 24, 2017

Meat Monday

Brain cancer is...

 ...never having to say, "Some day..."

You know Darrell.  Darrell loves meat.  Today at Ralph's he had already happily tossed into our basket turkey sausage patties and two packages of Canadian bacon.  Before we left the meat section, I found him staring wistfully at the lamb (above) sighing under his breath, "Some day..."

No husband of mine will ever need to dream about having lamb!  I urged Darrell to pick some out today.  He gleefully chose his favorite chops and added them to his meat collection in our basket before trotting off the to the produce section.  Lamb:  It's what's for dinner.

Easter Reveal

We received our Big Reveal text message to account for the millions of note- and jellybean-filled eggs on our lawn for Easter.  Hurrah! We had many of the same Holiday Hooligans, plus new Team D members.

Here's the video.
And here's its alternate YouTube link.

That's a whole lot of love! Thank you so much for the biggest Easter Egg Hunt ever.

Sunday, April 23, 2017

Friends: The Wait Is Worth it.

Brain cancer is...

...loving it when a plan comes together.

For two years our friends TK and Matt and we have been trying to arrange a meal together.  Today was the day!

TK and Matt hosted us at their fabulous Chinatown, Los Angeles home.

We drank a Santa Catalina Pinot Noir that they had been saving for the occasion.  We feasted on great cheeses, a tomahawk steak, lobster, and panna cotta.  Matt and TK, when you come to the OC, maybe we'll just go out.

We thoroughly enjoyed the feast, the company, the sights, and a bit of California history.

Welcome to Town

Street Scene
Part of the Zanja Madre, LA's original aqueduct
Outside the lobby at their super cool digs
Thanks for a great occasion, Matt and TK.  Team D:  Let's all hope that the next event with friends is right around the corner.

Saturday, April 22, 2017

Poor Mousse


Brain cancer is...

...feeling bad for Mousse.

A couple weeks ago, Mousse started limping.  X-rays revealed that Mousse has a condition common in large, male dogs of his age:  Osteochondritis Dissecans (OCD).  It is related to the formation of his elbow joints.  Things went awry at some point in his youth, and as a result, surgery was necessary to remove bits of bone floating about in the joint spaces.  We learned from Tiana that these bone fragments are called "joint mice." 

Mousse had his surgery while we were in Tampa, and he's home today.  His casts will stay on for five days.  The main goal is to keep him immobile for the next three weeks.  Poor, poor Mousse! Fortunately his spirits are good. 

Shortly after we touched down in Los Angeles...

...Alex, Tiana, Moira, and Tim took off for vacation in the United Arab Emirates.
Bon Voyage, Travelers!

Happy Saturday, Team D.  We wish your elbows all the best.









Friday, April 21, 2017

For Karen

Brain cancer is...

...not alone.

Karen, we learned about you and your GBM through your friend, Kathleen. Kathleen approached us in the Columbia restaurant at the Tampa Airport when she saw Darrell's Optune system.  Above you see Darell, Kathleen, Paige, and me celebrating today, celebrating openness, celebrating Optune, celebrating your little dog Hugo, celebrating you.

We are very, very sorry for your diagnosis. We bet it was a very bad surprise. We are very, very glad that you are getting the best care possible. We want you to know that we think your choice to use Optune was very brave. We want you to know that Darrell has been 14 months with no recurrence. We want you to know that he, like you, wakes up every day and says, "It's going to be a great day." We want you to know that, as of today, we are members of Team K.


We Have Doctors in the House!

Brain cancer is...

...alive to see the day.

We apologize for not posting yesterday (4/20).  We savored every second of Tiana and Alex's commencement day.


When Darrell was deciding whether to use Optune, in the end one statistic fueled his decision:  Optune data at the time suggested that Optune extends life for 3 to 5 months.  He reasoned that 3 to 5 months would allow him to live to see Alex and Tiana graduate.  Yesterday was that day.


It was a wonderful day, and Darrell and I held hands and experienced it together.  I feel such gratitude.


Here is a slide show of the day.
Try this link if the other doesn't work.


In addition to enjoying the company of Tim and Moira, you'll see that, on the Alex side of the family, we were joined by my mother, LuAnn, her sister, Roene, my sister, Meridyth, and her son, Nolan.


Thanks so much for celebrating this event with us, Team D.  We love you!


(Photo credits:  Some photos in the video were taken by Tim, Moira, and Meridyth.)

Wednesday, April 19, 2017

More Celebrations

Update 10:38 pm: we added a slideshow of this celebratory day.

Brain cancer is...

...still celebrating.

Today Tiana is receiving an award, and we  will enjoy the "commencement dinner," put on by the university.    Tomorrow is the actual commencement, at 10 a.m. Tampa time.

I'll post images tomorrow.

Update: Here's the day in a slideshow.

We hope you are celebrating things in your lives too.

Monday, April 17, 2017

Honor Society Dinner

Brain cancer is...

...celebrating AOA inductees.

The big event of the day was the Alpha Omega Alpha Honor Medical Society dinner.  Alex and Tiana were both inducted.  Go Kids, go!  It was great to be with Moira and Tim (Tiana's parents) again.  We  were together last at White Coat 2 in Allentown.

The slideshow also captures our University of South Florida walk.  Yes, Darrell found the bent.  We give Monday in Tampa two thumbs up.

We hope your Monday was a winner too.







Sunday, April 16, 2017

Welcome to Tampa

Brain cancer is...


...tucked in in Tampa.

The last (and only other) time we were here was four years ago, when we celebrated the stumpy white coats.  Here are a few pics of that day.
 





Today We celebrated Easter morning with a breakfast burrito at LAX.






We just finished the evening with ropas viajas ("old clothes") and plantains here in Tampa. So delicious.







Musings: Why do we love to travel so much? One thought occurred to me during dinner. When we are far away, we are strangers, new lovers just getting to know each other. Even though Darrell and I have been together since high school, I have never asked him how he chose the trumpet as his instrument.


Here's to young love at all ages.



Saturday, April 15, 2017

Q: When Is "Easter" a Verb?

A: Today!

Brain cancer is...

...Eastered!

Today we pronounce that "Easter" is a transitive verb, as in "Team D Eastered us so thoroughly today!"

Are you kidding us, Team D? Every egg had a note in it.  We started reading the notes and then realized that we need to relish them over time.  Too sweet and too savory for one day. 

I understand that the people who know Darrell and family love us and would write notes, but credential candidates in Blocks 8, 9, 21, and 22*?  You are that sweet to people you haven't even met yet?  May you always care for your students as much as you cared for us today. 

And Blocks 21 and 22:  I look forward to working with you this summer.  But no good deed goes unpunished.  Your first assignment is to design a great learning experience that involves a million plastic eggs.  Just keeeding (Darrell's words).

We were also Eastered by Yae Lan and John Baker and their beautiful cookies. 

Yae Lan is a fellow educator and a former student from research methods, probably from 20 years back.  We didn't want to do the math.  We just wanted to appreciate the cookies and say, "Thanks for Eastering us," and thanks for being members of Team D!

"Easter" is also an intransitive verb.  It doesn't require a direct object.  For example, "Today we Eastered." 

Summer treated at Grits.  Every bite was delicious.  Later we Eastered at Old Spaghetti Factory with Alex, the first occasion in a loooong string of celebrations this week.
He gave me the stumpy white med student coat that, it feels, you and we just celebrated.  MDs get long coats.  This all feels surreal for so many reasons.

Darrell and I are packed and ready to take off from LAX in the morning. You'll hear from us next from Tampa, according to plans at least.

Today we wish for you that an important noun in your life becomes a verb.  And we hope to be a part of it.  Today we heart you.

*If I missed a block it's because we only just started reading the notes.  We heart you too.







Friday, April 14, 2017

Pounding It!

Brain cancer is...

 ...getting pounded!

After a superb private patio breakfast in Temecula...

...we headed back to Fullerton, where Darrell pounded his monthly blood draw (above, see nude bandage band near his elbow). He will continue with monthly blood count monitoring to ensure that white blood cell counts keep rising beyond the "normal for a cancer patient" range into the "normal" range. (We discuss blood counts in this 10/21/16 post ).  Results are in, and all tiny-super-hero counts continue to rise.

Also pounding...the Department of Motor Vehicles:
Darrell's "disabled person" parking placard expires in June 2017.  Today we received the pass that is active through 2019.  You know you're doing well when your parking placard expires before you do! Pound it!

Need anything pounded?  Contact Darrell.

Bonus Content

Beowulf is back in town, rolling.


It's more complicated to talk about his parents, Alex and Tiana.  They did drive nonstop across the nation, Pennsylvania to Fullerton, a couple days back, but they are quickly scattering.  We'll cut to the chase and say that the family will reconvene in Tampa for the commencement festivities, with the first members arriving Sunday night.

Pound it this weekend, Team D!



Thursday, April 13, 2017

What We Need Before a Trip is...

...A trip!


Brain cancer is...

...enjoying a pre-trip trip.



We are with Curt and Barb, enjoying a mini vacation in Temecula.  It's quite lovely and relaxing and we are about ready to head to the restaurant for our "rain check" Valentines' Day dinner date.









Curt says, "Who needs Tuscany when we have Temecula?"


Happy Day, Team D!

Wednesday, April 12, 2017

Hurrah for New and News

Brain cancer is...


 ...enjoying new and news.

Today we appreciate my new, post-Mousse glasses and Darrell's new, non-black bucket hat.

We also appreciate the news that some Team D members have shared with us:  The results of the next phase of an Optune study were released this month. 

Recall that the FDA halted the Phase 3 Optune study in October of 2015 because the results clearly favored the treatment group (surgery, radiation, and chemotherapy, plus Optune users) above the control group (surgery, radiation, and chemotherapy only users) for newly diagnosed Glioblastoma. 

Newest results suggest that Optune prolongs life for the average GBM patient by 5 months.  It increases two-year survival rates to 43%.  Optune nearly triples five-year survival rates (still low--13% compared to 5%, but still:  Nearly triple! And we're talking Big D!). 

Brenda sent the early, technical version of results, which were carried on OncLive.

Here's the Internet version of the EyeWitness News clip from last week that Gordon shared with us.
 
Here's the Slowiks' offering of the New York Times write up.  

And here it is in the Washington Times.

Hurrah for science! Hooray for innovation! Hurrah for Team D members! Hurrah for hats!

Tuesday, April 11, 2017

A Great Day in Three Acts

Brain cancer is...

 ...enjoying a day in three acts.

Act One:  Darrell found the ducklings using careful creek side observation skills.

Act Two:  Hallie, Andi and Ruth discovered a fantastic new coffee find:  Classic Rock Coffee.

We have been patiently waiting for them to open.  The proprietors, Danny and Christine came over to say hello.

What fun!  We'll be back!

Act ThreeAnother date night with Melanie and Gail.  (See how well we are keeping up the tradition?)

Twisted Vine.  Act 3.0

Patio. Act 3.3.  (Act 3.2 was Ziings.  Also good.)

We hope your day acted well too.  Have you had some fun dates lately? No pressure.